Outcomes in cardiomyopathy
Research type
Research Database
IRAS ID
349627
Contact name
Perry M Elliott
Contact email
Research summary
Cardiomyopathy database
REC name
West of Scotland REC 4
REC reference
24/WS/0149
Date of REC Opinion
7 Nov 2024
REC opinion
Favourable Opinion
Data collection arrangements
The database will store data from routinely collected parameters from history, pedigree analysis, physical examination, blood tests, electrocardiogram,
ambulatory ECG recording, exercise testing, echocardiography, cardiac magnetic resonance. The data will be collected from electronic medical records. The database will also collect data from clinical genetic testing or from previous research projects. No additional investigations will be carried out for the study. All data extracted from the database will be anonymised.Research programme
The data collected in the database will be used in studies with the following aims: 1) Development of an improved risk stratification for sudden cardiac death. 2) Novel genotype-phenotype correlations in relation to risk of sudden death and advanced heart failure. Expected value of results: This project will provide new insights in the natural history of cardiomyopathies and provide important prognostic information that can be used in day to day clinical practice. It will improve identification of patients at risk of developing sudden cardiac death and advanced heart failure. This will lead to alterations in how these patients are managed.
Research database title
Cardiomyopathy database
Establishment organisation
University College London Institute for Cardiovascular Science
Establishment organisation address
Rayne Institute
5 University Street
WC1E 6JF