'Our Digital Health' ID
Research type
Research Study
Full title
'Our Digital Health': A Longitudinal Modelling and Digital Diary Study of the digital participation of people with intellectual disabilities
IRAS ID
326026
Contact name
Darren Chadwick
Contact email
Sponsor organisation
Liverpool John Moores University
Duration of Study in the UK
2 years, 7 months, 31 days
Research summary
This project consists of 4 work packages.
Work package 1 will include reviewing the literature to gather information on current measures of digital health participation for people with intellectual disabilities (ID). Eight and 4 focus groups will be held with people with ID and carers respectively (4 to 6 people in each group). Participants will be recruited via organisations with established links to people with ID and carers. Information gathered will be used to develop an 'Our Digital Health' questionnaire.
In work package 2, the Digital Health Participation questionnaire will be completed by 400 people with ID, either alone or with support or by their carers. The questionnaire will include digital health participation, wellbeing, and background questions (Appendix 26). Participants will be recruited via organisations with established links to people with ID and their carers as well as invite participants who participated in work package 1. The questionnaire will be completed at two time points (start of the study and after 8 months). Two hundred people without ID will also be surveyed at one time point. This group will be recruited via local advertisement and social media. This will allow an understanding of levels of digital and health inequality.
In work package 3, 40 people with ID or carers (a sub-sample of work package 2 participants) will use tablets as a diary. They will record their everyday experiences of using digital technology for their health. This information will be used to identify what influences their digital health participation and what it is that excludes them on a day-to-day basis.
In work package 4, workshops with researchers, people with ID and carers will be hosted to share study findings and gather recommendations to inform guidance on improving digital health. The research will also be disseminated though an online launch.
REC name
London - Camberwell St Giles Research Ethics Committee
REC reference
23/LO/0880
Date of REC Opinion
15 Jan 2024
REC opinion
Further Information Favourable Opinion