North West Sub-National Secure Data Environment:Greater Manchester ICB [CAG Pilot]
Research type
Research Database
IRAS ID
338265
Contact name
George Tilston
Contact email
Research summary
Greater Manchester Secure Data Environment
REC name
East of England - Cambridge East Research Ethics Committee
REC reference
24/EE/0036
Date of REC Opinion
28 Mar 2024
REC opinion
Further Information Favourable Opinion
Data collection arrangements
The Analytics and Data Science Platform (ADSP) is the SDE for Greater Manchester ICS and will provide Greater Manchester’s (GM) longitudinal record for non-direct care uses. In the first instance this will be by securely linking data from primary care (GP records from the GM Care Record) and secondary care (from NHS England’s Secondary Uses Service) at patient level, with the longitudinal record expanding over time as additional data are linked. The ADSP is GM’s recognised platform for conducting all forms of analysis to support Population Health Management (PHM) and Health and Care Commissioning e.g., the planning and evaluation of services.
The ICS needs to link data contained within the regional shared care record with national and other local data sets. To do this data has to be extracted from the GM Care Record with the NHS number. Upon receipt NHS GM will be supported by the Northwest Data Services for Commissioners Regional Office (DSCRO) to apply a consistent pseudonym to the shared care record data.
Research programme
The SDE provides de-identified UK health data for research purposes. Previous research using some of the involved datasets has evaluated the Covid-19 vaccination rollout, investigated self-harm trends in primary care during the pandemic, and compared outcomes between patients with severe mental illness and matched controls. Only approved researchers can access the data and study proposals are subject to a review by a range of stakeholders, from data controllers to statistical experts and public representatives. The GMCR preceded the SDE and was focused on primary care data. This resource has led to more than eleven peer-reviewed journal publications, with many more studies currently ongoing. More information on completed studies can be found at https://gmwearebettertogether.com/research-and-planning/.
Research database title
Greater Manchester Secure Data Environment
Establishment organisation
NHS Greater Manchester Integrated Care
Establishment organisation address
Ground Floor, Parkway 3
Parkway Business Centre
Princess Road
M147LU