NHIC Hepatitis Theme Database V1

  • Research type

    Research Database

  • IRAS ID

    174658

  • Contact name

    Eleanor Barnes

  • Contact email

    ellie.barnes@ndm.ox.ac.uk

  • Research summary

    National Institute for Health Research Health Informatics Collaborative Hepatitis Theme Database

  • REC name

    South Central - Oxford C Research Ethics Committee

  • REC reference

    15/SC/0523

  • Date of REC Opinion

    6 Oct 2015

  • REC opinion

    Favourable Opinion

  • Data collection arrangements

    The NHIC Hepatitis Theme Database will be collecting anonymised routine clinical data listed below from hospitals EPR systems, on patients with Hepatitis B, C, D, E and Autoimmune Hepatitis.

    Demographics Data, Social Behaviour, Hepatitis Infection Risk Factors, Reinfection, Non-Viral Medication, Imaging, HIV Diagnosis, Diagnosis, Co morbidity, Cirrhosis Staging, Antiviral Treatment, Drug Information, Compliance, Side Effects, Outcomes, Liver Biopsy reports, Lab Results, General and Viral Lab Results, General Pregnancy Information, Vaccination records, Transmission information, Final Outcome.

  • Research programme

    The Hepatitis Theme sits with the The National Institute for Health Research Health Information Collaborative (NHIC) Programme. Which's stated aim is to demonstrate how sharing of NHS clinical information, held electronically, can facilitate more effective clinical research, and lead to benefits for patients and the public, researchers and NHS staff. The Hepatitis Theme intends to work closely with the existing Hepatitis research projects such as STOP-HCV and HCV Research UK.

  • Research database title

    National Institute for Health Research Health Informatics Collaborative Hepatitis Theme Database

  • Establishment organisation

    Oxford University Hospitals NHS Trust

  • Establishment organisation address

    NIHR Oxford Biomedical Research Centre, Clinical Informatics Group

    John Radcliffe Hospital

    OX3 9RR