Neurofibromatosis biobank and registry

• Research type

  Research Tissue Bank

• IRAS ID

  169640

• Research summary

  Neurofibromatosis biobank and registry

• REC name

  London - Fulham Research Ethics Committee

• REC reference

  15/LO/0633

• Date of REC Opinion

  19 Jun 2015

• REC opinion

  Further Information Favourable Opinion

• Data collection arrangements

  Donors will be identified by the healthcare team directly responsible for providing routine care and treatment for neurofibromatosis and schwannomatosis patients. Arrangements for consenting patients will occur within this clinical setting. Blood fractions, urine and surplus tissue from consented neurofibromatosis and schwannomatosis patients will be stored at each of the storage establishments (Plymouth Hospitals NHS Trust, Plymouth University Peninsula Schools of Medicine and Dentistry, Central Manchester University Hospitals NHS Foundation Trust, Royal National Orthopaedic Hospital NHS Trust, Salford Royal Hospital NHS trust).

• Research programme

  The aim of this research is to collect longitudinal samples from neurofibromatosis and schwannomatosis patients to store in a specific biobank. These samples will be used to advance the knowledge of neurological diseases. A priority of this biobank is to identify new biomarkers which can be used to enhance the healthcare of neurofibromatosis and schwannomatosis patients.

• Storage license

  12103

• RTBTitle

  Neurofibromatosis biobank and registry

• Establishment organisation

  Plymouth University Peninsula Schools for Medicine and Dentistry

• Establishment organisation address

  The John Bull Building

  16 Research Way

  Plymouth Science Park

  PL6 8BU