Myasthenia Database IRAS 299668

• Research type

  Research Database

• IRAS ID

  299668

• Contact name

  Sui Wong

• Contact email

  suiwong@nhs.net

• Duration of Study in the UK

  years, months, days

• Research summary

  Myasthenia Database IRAS 299668

• REC name

  London - London Bridge Research Ethics Committee

• REC reference

  21/LO/0572

• Date of REC Opinion

  3 Sep 2021

• REC opinion

  Favourable Opinion

• Data collection arrangements

  Clinical details routinely recorded during clinical care will be recorded onto this database (created as a clinical application on Moorfields network, with restricted access), securely hosted within the Moorfields IT network (i.e. with firewalls and security in place), and access to the database limited to the patient's clinical team.

• Research programme

  Myaware is the UK's Myasthenia Gravis charity who have supported and funded the initial set up of this database in 2015 (IRAS 178663) as part of understanding the natural history and outcome of Ocular Myasthenia.

• Research database title

  Myasthenia Database IRAS 299668

• Establishment organisation

  Moorfields Eye Hospital

• Establishment organisation address

  162 City Road

  London

  EC1V 2PD