My T1D Care hub
Research type
Research Study
Full title
My T1D Care Hub: Co-Creating a digital psychosocial measure for young people living with Type 1 Diabetes as part of everyday self-management
IRAS ID
334108
Contact name
Emma Berry
Contact email
Sponsor organisation
Queen's University Belfast
Clinicaltrials.gov Identifier
N/A, N/A
Duration of Study in the UK
0 years, 5 months, 13 days
Research summary
In Northern Ireland there is no consistent/routine way to track and review psychological and social (psychosocial) well-being for young people living with type 1 diabetes. Diabetes check-ups tend to focus on medical outcomes, with little room for young people to reflect on and explore their psychosocial challenges. Outside and in between clinical appointments there is also no easy way for young people to access psychosocial self-help resources and guidance or sign-posting to support them at the time of need.
This study aims to address this gap in Paediatric diabetes care by evaluating experiences of and perspectives toward a newly developed digital psychosocial wellbeing app/web platform (My TY1D Care Hub). My TY1D Care Hub has been co-designed with young people living with type 1 diabetes aged 13-18 years, their caregivers, and diabetes clinicians. The digital hub enables young people living with type 1 diabetes to track, self-monitor, and access self-help resources in everyday life.
We will recruit 20 young people living with type 1 diabetes aged 13-18 years through the Southern Health and Social Care Trust to test the hub over 7 days (in their own time and using their own smart device with guardian/parental consent/guidance for under 16 year olds) and then to provide feedback in a short survey and in an informal interview (lasting 30-45 minutes). We will also recruit 6-10 diabetes clinicians who work with young people aged 13-18 years to take part in an interview (30 minutes) or focus group (1-1.5hours) to gather their feedback after viewing a demo of the hub.
We envisage that this digital hub will be eventually integrated into Paediatric Diabetes clinical management, to supplement routine diabetes care and the tracking capabilities can be used to inform what young people discuss in clinic. The results will help inform the next step in research.
REC name
HSC REC B
REC reference
24/NI/0015
Date of REC Opinion
26 Feb 2024
REC opinion
Further Information Favourable Opinion