Measuring Wellbeing in People with Neurological Conditions
Research type
Research Study
Full title
Exploring a Client-Rated Outcome Measure of Wellbeing During Neurological Rehabilitation
IRAS ID
251235
Contact name
Franziska Leutner
Contact email
Sponsor organisation
University College London
Clinicaltrials.gov Identifier
UCL Data Protection Registration, Z6364106/2018/08/70
Duration of Study in the UK
0 years, 8 months, 21 days
Research summary
This project aims to develop a questionnaire that can be used to measure the wellbeing of clients who have a neurological condition. People with such conditions often have cognitive, physical and language impairments which make it difficult for them to use many measures of mood and wellbeing. The questions asked are often difficult to answer when you have a neurological condition. For example, measures of mood often ask if people feel slowed down or lacking in energy, both are very common symptoms of neurological conditions and not necessarily a reflection of their mood or wellbeing. Our community neuro-rehabilitation team routinely measures mood (anxiety and depression) through self report (Hospital Anxiety and Depression Scale- HADS) and client wellbeing through a therapist rated scale (TOM).
We would like to understand our client's wellbeing from their perspective. We would like to be able to accurately monitor their wellbeing at the during their rehabilitation and use this information to inform and improve their treatment.
All clients attending Islington Community Neurorehabilitation Team (ICNRT) for rehabilitation would be eligible to take part. The study would take place at the ICNRT premises: Islington Outlook. All participants would be required to complete two short questionnaires; the Hospital Anxiety and Depression Scale (HADS) and the newly developed wellbeing scale. Treating therapists would (as is routine clinical practice) complete the Therapy Outcome Measure (TOMs) for each participant. All measures would be completed at the start and end of treatment.
This study would gather data between November/December 2018 and February/March 2019, based on the earliest the study receives ethical approval. We hope to write up the study to be published in a journal article. If the questionnaire is found to be helpful we would make it available to be used in routine clinical practice.
REC name
Wales REC 6
REC reference
18/WA/0367
Date of REC Opinion
22 Oct 2018
REC opinion
Further Information Favourable Opinion