Mapping out the patient pathway, for patients with PAD

  • Research type

    Research Study

  • Full title

    Mapping out the patient pathway, using photovoice methodology, for patients with peripheral arterial disease

  • IRAS ID

    224247

  • Contact name

    Abigail Morbi

  • Contact email

    a.morbi@imperial.ac.uk

  • Sponsor organisation

    Imperial College

  • Duration of Study in the UK

    0 years, 3 months, 0 days

  • Research summary

    Peripheral arterial disease (PAD) is a chronic disease, affecting arteries in the lower limbs. It places a significant burden on patients, with symptoms affecting quality of life and daily activities and on healthcare resources, with patients requiring multi-disciplinary management, in the community and secondary care, for treatment of PAD and management of associated cardiovascular risk factors.
    The aim of this study is to understand the patient experience of the pathway for the management of PAD, from first referral to vascular services, through to post-amputation and identify where the pathway could be improved.
    Participants will be recruited from St. Mary's hospital and will have already been given a diagnosis of PAD. They will be required to take photographs each time they access healthcare services or do any activity that they feel is important to their management. They will be asked to keep a diary, writing a caption to go alongside each photograph, to serve as a reminder of why the photograph was taken. Participants will be encouraged to make notes in the diary about any problems they encounter in managing their PAD and accessing services. They will be required to collect the data over a 3 month period. They will be invited to meet with a member of the research team at the end of each month, to discuss the photographs and captions, and to discuss the patient’s experience of the pathway and any aspects that could be improved. The interviews will be audio recorded and transcripts will be collated on a database and used for quantitative analysis, alongside the photographs and captions.
    Outcomes will include identification of gaps in services and areas where the pathway can be improved, to improve patient experience and satisfaction with their care.

  • REC name

    South West - Frenchay Research Ethics Committee

  • REC reference

    17/SW/0064

  • Date of REC Opinion

    15 Mar 2017

  • REC opinion

    Favourable Opinion