Mapping financial support for the terminally ill
Research type
Research Study
Full title
Mapping voluntary sector and local government financial support services in England and Wales available for people living with a terminal illness: Understanding the barriers and facilitators to access.
IRAS ID
341271
Contact name
Nicola White
Contact email
Sponsor organisation
University College London
Clinicaltrials.gov Identifier
Z6364106/2024/04/27 , UCL Data Protection Registration Number
Duration of Study in the UK
1 years, 1 months, 1 days
Research summary
The overall aim of this research is to understand the availability, suitability, and accessibility of voluntary sector and local government financial support schemes for people living with terminal illness, and their families, in England and Wales.
This will be achieved through the following objectives, completed in two phases.
Phase 1: Quantitative survey
Objective 1. Mapping financial support services provided by voluntary organisations and local government that people with a terminal illness (and their families) are eligible to apply for across England and Wales.
Objective 2. Comparing availability of, and access to, financial support for different population groups and by geographical areas, including regions with differing deprivation profiles.
Phase 2: Qualitative interviews
Objective 3. Understanding the experiences and perceptions of financial support from the perspective of a person living with terminal illness and their family, the referrer, and those providing financial support.Ethical approval has already been granted for objectives 1 and 2 (phase 1) of this research (UCL REC reference 26921.001), on the 19th of February 2024).
This protocol describes the research for objective 3 only (Phase 2).REC name
West Midlands - Coventry & Warwickshire Research Ethics Committee
REC reference
24/WM/0209
Date of REC Opinion
18 Nov 2024
REC opinion
Further Information Favourable Opinion