Male spouse's experiences of caring for partner with dementia
Research type
Research Study
Full title
South Asian male spouse's experiences of caring for a partner with Dementia
IRAS ID
324981
Contact name
Elizabeta Mukaetova-Ladinska
Contact email
Sponsor organisation
University of Leicester
Duration of Study in the UK
0 years, 10 months, 29 days
Research summary
South Asian individuals are known to be at greater risk of developing dementia due to the high rates of diabetes, heart disease and stroke. The increased prevalence places further stress on healthcare services, due to the limited knowledge, awareness and understanding of the condition, amongst this population. Additionally, dementia is one of the most common reasons for requiring long-term homecare, placing a great amount of responsibility on an individuals’ immediate family. Care is largely gendered, with many aspects of caring considered to be a core part of femininity. As such, caring in SA communities is generally viewed as a female dominated task, with female members of the family largely responsible for taking care of their own and their partners’ family members during ill health. However little is known about the extent to which this sense of duty applies to males caring for a spouse, despite a large proportion of dementia spousal carers being male. Therefore, this study aims to explore South Asian male spouse's experiences of caring for a partner with Dementia. Data will be collected via individual, semi-structured, interviews with the carers, asking a range of questions. A combination of questions based on existing literature and the opportunity for participants to speak about their individual experiences will be presented. Individuals from an Indian or Pakistani ethnic background, aged 18 or over, will be approached for the study. Participation will be completely voluntary.
REC name
South West - Frenchay Research Ethics Committee
REC reference
23/SW/0056
Date of REC Opinion
11 Jul 2023
REC opinion
Further Information Favourable Opinion