Long-term impact of Retinopathy of Prematurity on quality of life
Research type
Research Study
Full title
Study of Long-term impact of Retinopathy of Prematurity on Vision related Quality of life
IRAS ID
305719
Contact name
Nihal Kenawy
Contact email
Sponsor organisation
Liverpool University Hospitals NHS Foundation Trust
Duration of Study in the UK
0 years, 11 months, 31 days
Research summary
Retinopathy of Prematurity (ROP) is a condition when the blood vessels in the eyes don’t develop normally in babies born much earlier than their expected date of delivery. Not all premature babies develop ROP but it is very important that we look for it in all premature babies. This is so, if there is a problem, it is found early and treatment can be given for the best result. Most ROP cases are mild and do not require treatment. However, severe cases need to be identified to be monitored closely until regression or to be treated if not regressing to avoid blindness. If such severe cases do not regress completely or get treated, they can develop visual problems, which can have a big impact on their quality of life (QoL).There has been limited research on QoL related to ROP and only on children, which has shown a significant impact on children’s functionality such as in competence, personality, speech, ambulation and dexterity. However, there hasn’t been any research on adults living with the condition, so we need to better understand the vision-related impact on those adults' daily lives to aid identifying their problems and the support they would require.
REC name
South Central - Berkshire Research Ethics Committee
REC reference
22/SC/0086
Date of REC Opinion
11 Mar 2022
REC opinion
Favourable Opinion