Long Covid Personalised Self-managemenT support EvaluatioN (LISTEN)

  • Research type

    Research Study

  • Full title

    Long Covid PersonalIsed Self-managemenT support EvaluatioN (LISTEN)

  • IRAS ID

    306220

  • Contact name

    Monica Busse

  • Contact email

    busseme@cardiff.ac.uk

  • Sponsor organisation

    Kingston University

  • ISRCTN Number

    ISRCTN36407216

  • Duration of Study in the UK

    1 years, 4 months, 31 days

  • Research summary

    Individuals with long Covid experience a wide variety of ongoing problems such as tiredness and difficulty with everyday tasks and means they can struggle to return to their former lives. This is then made worse by uncertainty and a lack of understanding by some healthcare professionals.

    The LISTEN project is developing, delivering and evaluating an intervention which is a package of self-management support, to see if this helps individuals with long Covid to live their normal lives. The intervention is co-designed with individuals living with long Covid and a large patient and public panel from diverse backgrounds to ensure that the intervention can be personalised to individual needs.

    We will recruit individuals with long Covid and randomly allocate them to an intervention or control group. The control group will receive NHS usual care; the intervention group will receive the co-designed LISTEN resources and up to six coaching sessions from the trained practitioners.

    We will estimate the cost of the intervention and test its effect on how participants feel and cope with everyday activities. We will record healthcare resource use, expenses, and time of work to understand the economic impact of long Covid and our intervention on society and individuals. We will explore ways in which the intervention can be used across the NHS and broader communities.

    We will share our findings through accessible communications designed with our Patient and Public Involvement (PPI) group, academic publications and conferences.

  • REC name

    Wales REC 7

  • REC reference

    21/WA/0368

  • Date of REC Opinion

    26 Nov 2021

  • REC opinion

    Favourable Opinion