Long COVID Patient Journey
Research type
Research Study
Full title
The Long COVID Patient Journey: A Survey of Primary Care Experiences.
IRAS ID
332396
Contact name
Steven P Rimmer
Contact email
Sponsor organisation
Birmingham City University
Duration of Study in the UK
0 years, 5 months, 2 days
Research summary
Long COVID is a condition where symptoms of COVID-19 persist for weeks, months, or even years after the initial infection. A range of symptoms, include fatigue, shortness of breath, brain fog, and pain. These symptoms can be debilitating and can have a significant impact on people's lives. It is estimated that up to 20% of people who have COVID-19 will experience long COVID.
The purpose of this research is to investigate the primary care patient pathway for people with long COVID. A disease previously unknown to humans, the primary care patient pathway for people suffering with long COVID is often fragmented and inconsistent. This can lead to delays in diagnosis and treatment, as well as a lack of coordination of care.
The specific focus of the study is to survey patients with long COVID to understand their experiences with the patient pathways in primary care. The survey will ask questions about the symptoms of long COVID, the care they have received, and their satisfaction with the care they have received.
The study is open to people who have been diagnosed with long COVID. Participants must be 18 years of age or above. The study will be conducted online. Participants can access the survey from multiple devices, Desktop computer, laptop, mobile phone, tablet etc. Participants will be asked to complete the survey within 14 days of receipt.
This research is of great relevance to patients because it has the potential to improve the care of people with long COVID. By understanding the patient pathways in primary care, researchers can identify areas where improvements can be made. This could lead to better care for people with long COVID, which could improve their quality of life. Your participation will help us to better understand the challenges faced by people with long COVID and to make recommendations for improving their care.REC name
South Central - Oxford C Research Ethics Committee
REC reference
24/SC/0101
Date of REC Opinion
27 Mar 2024
REC opinion
Further Information Favourable Opinion