Living with long-term conditions: qualitative interviews
Research type
Research Study
Full title
Patient-reported outcomes for long-term conditions: qualitative interviews with patients
IRAS ID
145075
Contact name
Raymond Fitzpatrick
Contact email
Sponsor organisation
Clinical Trials and Research Governance
Research summary
A large proportion of the population is affected by one or multiple long-term conditions (LTCs). One of the aims of the NHS Outcomes Framework is to improve quality of life in LTCs. Quality of life is to be monitored by patient-reported outcome measures (PROMs). If PROMs are to be used to monitor quality of life for LTCs within the NHS, a new measure is needed that captures issues that are specific to LTCs whilst simultaneously addressing issues that are relevant across LTCs. Currently, but no such PROM exists. Therefore a multi-phase project aims to develop such a PROM, starting with qualitative interviews with people with LTCs. The interviews aim to gain insight into the impact of LTC(s) on well-being, identifying the health and social care needs and their associated burden; and identifying the priorities for the management of their LTC(s) from the perspectives of people with LTCs.
Up to 80 patients with LTCs will be invited by their GP practices to participate in a single qualitative interview, lasting 60 to 90 minutes. Patients will be recruited from Oxfordshire and London. The aim is maximise diversity of LTCs and therefore patients with the following LTCs will be invited into the study: cancer, chronic obstructive pulmonary disease (COPD), ischaemic heart disease (IHD), diabetes, depression, inflammatory bowel disease (IBD), multiple sclerosis (MS), osteoarthritis (OA), schizophrenia and stroke. The interviews will be recorded and transcribed before a thematic analysis is conducted in the qualitative software package NVIVO. The data from the interviews will be used to generate items for a PROM specific to LTCs.
The study is jointly funded by a Department of Health Policy Research Unit and a National Institute for Health Research CLAHRC (Collaboration for Applied Health Research and Care).REC name
London - Bromley Research Ethics Committee
REC reference
14/LO/0834
Date of REC Opinion
21 May 2014
REC opinion
Further Information Favourable Opinion