Living with breathing pattern disorder V1.0.
Research type
Research Study
Full title
Living with breathing pattern disorder: An interpretive phenomenological analysis.
IRAS ID
329893
Contact name
Catherine Moffat
Contact email
Sponsor organisation
Anglia Ruskin University
Duration of Study in the UK
3 years, 6 months, 15 days
Research summary
Topic
Breathing pattern disorder (BPD) is where breathing pattern is not stable, efficient or adaptive to activity, leading to a wide range of symptoms affecting quality of life and ability to work, and may lead to high healthcare use. Incidence is 9.5% in the general population (Thomas et al., 2005), 22% in elite athletes (Hull et al., 2021), 17.6 – 64% in those with asthma (Connett and Thomas, 2018), 47% in those with chronic obstructive pulmonary disease (Law et al., 2018) and 29.4 – 63.4% in those with long COVID (Mancini et al., 2021; Frésard et al., 2022). BPD consideration is recommended in the British Thoracic Society (BTS)/ Scottish Intercollegiate Guidelines Network (SIGN) Asthma Management Guidelines (BTS and SIGN, 2019) and the Global Initiative for Asthma (GINA) Recommendations (GINA Management and Prevention, 2022).Relevance
My clinical experience and evidence from my scoping review suggest a proportion of patients may remain sceptical at the suggestion that BPD may play a part, or be the cause, of their symptoms. Understanding the lived experience of BPD may inform patient-clinician interaction, improving communication and understanding between the two parties, vital for diagnosis acceptance and subsequent treatment adherence.Research purpose
Research question:
How do adults living with BPD make sense of their experience of symptoms and diagnosis?Aim:
To gain a deeper understanding of BPD from the patient’s perspective, to inform clinical interaction when providing diagnosis and explaining the concept of BPD to patients.Objectives:
1. To explore the perception and meanings of the symptoms of BPD.
2. To examine the perception and meanings of the diagnostic process for BPD.Setting and participants
Participants with BPD will be recruited from the BPD clinic at a large university teaching hospital in the East of England.Data collection
Participants will be interviewed, online for 60-90 minutes, via Microsoft Teams.REC name
London - Camden & Kings Cross Research Ethics Committee
REC reference
24/LO/0065
Date of REC Opinion
18 Mar 2024
REC opinion
Further Information Favourable Opinion