Lived experiences of CYP experiencing an IBD Transition Process
Research type
Research Study
Full title
What are the Lived Experiences of Children and Young People aged between 13-20 years old experiencing the Inflammatory Bowel Disease (IBD) transition from paediatric to adult services?
IRAS ID
264519
Contact name
Peter F Dryden
Contact email
Sponsor organisation
Northumbria University
Duration of Study in the UK
0 years, 8 months, 22 days
Research summary
The aim of this study is to build an understanding of how children and young people (CYP) living with Inflammatory Bowel Disease (IBD), experience the transition process. McPheeters et al., (2014) identified that research around IBD transition has lagged far behind that of other chronic conditions such as diabetes, cystic fibrosis and other young people with special health care needs. Whilst some learning can be gained from the experience of young people living with other chronic conditions, IBD differs from most of these conditions as the mean age of diagnosis is 15 years (Kappelman et al., 2007). This means that young people with IBD must undergo an accelerated transition process while at the same time may struggle to adjust to a demanding chronic illness that fosters feelings of vulnerability, embarrassment, lack of control and social isolation (Nicholas et al., 2007). The thoughts and feelings of the participants contribute to a deep understanding of lived experiences by exposing taken for granted assumptions about these ways of knowing (Starks et al., 2007). This is recognised as a gap in the current literature.
REC name
London - West London & GTAC Research Ethics Committee
REC reference
23/PR/0736
Date of REC Opinion
12 Sep 2023
REC opinion
Further Information Favourable Opinion