’Let’s Talk’
Research type
Research Study
Full title
A peer delivered disclosure programme as an intervention to combat the stigma of psychosis: intervention refinement
IRAS ID
273414
Contact name
Melissa Pyle
Contact email
Sponsor organisation
Greater Manchester Mental Health NHS Foundation Trust
Duration of Study in the UK
0 years, 9 months, 31 days
Research summary
People who experience psychosis face stigma and discrimination. For some, the negative public beliefs about psychosis can affect how a person considers their identity. This is referred to as internalised stigma and it can result in loss of hope and optimism, depression and disempowerment, and act as a barrier to recovery. We know little about how best to support people with issues of internalised stigma. There have been very few effective approaches to support people with psychosis with internalised stigma. However, one intervention that has been shown to be helpful is the Honest Open Proud (HOP) programme, a manual-based intervention delivered by peers (people with lived experience of mental health problems), which aims to reduce internalised stigma. This intervention has been shown to be helpful in the United States and Germany, but has yet to be evaluated in the UK. We have been funded by the National Institute for Health Research (NIHR) through the Research for Patient Benefit (RfPB) programme to refine the intervention and to conduct a feasibility Randomised Controlled Trial (RCT). \nThis ethics application is concerned with the first part of the funding i.e. refinement of the intervention. Following review with our Patient and Public Involvement Group, the name of the intervention has been changed to ’Lets Talk Stigma’. The intervention will be adapted via research with key stakeholders i.e. service users, peer support workers (PSW) and NHS staff. The primary approach to refining the intervention will be via qualitative interviews service users with psychosis and peer support workers. Interviews will be thematic analysed and inform the refinement of the intervention. In addition, to inform the subsequent feasibility Randomised Controlled Trial (RCT) and parameters for a future definitive trial we will conduct surveys with service users and NHS staff. [COVID-19 amendment 27/04/2020] Extend our existing service user survey to examine the possible psychological andsocial effects of the coronavirus COVID-19 pandemic\n
REC name
North West - Greater Manchester East Research Ethics Committee
REC reference
19/NW/0757
Date of REC Opinion
5 Feb 2020
REC opinion
Further Information Favourable Opinion