Late effects after single fraction total body irradiation

  • Research type

    Research Study

  • Full title

    Evaluation of late effects following single fraction total body irradiation as part of conditioning for bone marrow transplant for benign haematological disease in children.

  • IRAS ID

    273637

  • Contact name

    Yen Ching Chang

  • Contact email

    yenchingchang@nhs.net

  • Sponsor organisation

    Univeristy College London

  • Duration of Study in the UK

    0 years, 6 months, 31 days

  • Research summary

    Total body irradiation (TBI) is used in children with rare haematological disorders as part of the conditioning regime prior to bone marrow transplant. TBI for haematological cancers usually involves a total dose of 12-14.4Gy given in 1.8 Gy per fraction twice daily on consecutive days for 3-4 days. The late effects including endocrine, cardiac, pulmonary and renal toxicity, cataract formation, neurocognitive sequlae, infertility and secondary malignancies are relatively well described in the literature.

    Conversely TBI for benign (non-cancerous) haematological conditions including thalaessamia, sickle cell disease and aplastic anaemia, involves a single fraction of radiotherapy at a dose of 2-4 Gy. To the best of our knowledge the late side effects of single fraction TBI in children, have not been described in the literature. Naturally this is something children and their parents wish to be informed about, especially considering radiotherapy is being used for a benign condition. A greater understanding of these late side effects would help inform future clinic discussions, consent processes and patient information leaflets not only at UCLH but at other treating centres.

    The study will involve distribution of a questionnaire regarding late side effects which patients may be experiencing. It will focus on patient reported outcomes of these late side effects and also assess quality of life after TBI.

  • REC name

    London - Dulwich Research Ethics Committee

  • REC reference

    20/LO/0444

  • Date of REC Opinion

    17 Jun 2020

  • REC opinion

    Further Information Favourable Opinion