KSS Autism: Parameters and Future Care
Research type
Research Study
Full title
Broad Phenotype Children with Autism in Kent, Surrey, and Sussex: Developing a Self-Report Questionnaire Prioritising Individual Self-Care
IRAS ID
325030
Contact name
Sophie McGrevey
Contact email
Sponsor organisation
Sussex Community NHS Fondation Trust
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Referrals for autism assessment have greatly increased in the last few years. This means that waiting times are longer for families, and children and young people are struggling to get the support they need. This also means that the number of autistic children and young people we think there are, is not correct. We need a better understanding of the true number of autistic children and young people so that we can provide better support for them.
This research aims to understand what autism looks like in Kent, Surrey, and Sussex (KSS) to better help autistic children and young people. To do this, we will ask schools about the number of autistic children in their school to better understand the number of children and young people with autism in KSS. Secondly, we will talk with autistic children and young people to find out about the support they need. The information we gather will help us to develop a quality-of-life measure, which can be used by schools to help autistic children and young people get the support they need.
REC name
London - Hampstead Research Ethics Committee
REC reference
23/PR/0728
Date of REC Opinion
31 Aug 2023
REC opinion
Further Information Favourable Opinion