Kidney Inequalities: Needs, Data, Experiences, Response (KINDER)
Research type
Research Study
Full title
Understanding and reducing inequalities in kidney health care and outcomes in Scotland
IRAS ID
336432
Contact name
Simon Sawhney
Contact email
Sponsor organisation
University of Aberdeen and NHS Grampian
Duration of Study in the UK
1 years, 6 months, 1 days
Research summary
This study will provide a clearer understanding of the sources of inequities in kidney health care in Scotland, and suggest actions that could make kidney care fairer for all. People with kidney disease from deprived (under-served) areas of Scotland are more likely to miss opportunities to receive healthcare, get worse quicker, and die younger. We do not yet know how best to address this. We propose a novel study following 140,000 people with newly diagnosed kidney disease in Scotland. By linking health data from people in the study to the Scottish Censuses of 2011 and 2022, and by following them over time, we will be able to study the relationship between socioeconomic circumstances and kidney health in greater detail than has previously been possible. We will learn how deprivation influences the diagnosis, care, and health outcomes of people from different backgrounds. We will also use this study to evaluate the reverse relationship of how poor kidney health affects their subsequent life circumstances including their ability to work, living with a disability, and mental health. We will talk to people of working age in Scotland who have kidney disease to hear about what it is like for them to live with it and access care. We will also have group discussions with primary care staff to learn about how they diagnose the disease, help patients get the care they need, and any changes they have had to make in their approach. Then, in workshops with patients and professional experts, we will agree on priority strategies and actions that address the problems that we identify.
REC name
HSC REC A
REC reference
24/NI/0037
Date of REC Opinion
20 Mar 2024
REC opinion
Further Information Favourable Opinion