Key Stakeholders Values Related to Patient Education
Research type
Research Study
Full title
Patient, Carer, Healthcare Professional and Public Values and how they relate to Education and Activation in a Cancer Care Setting.
IRAS ID
268911
Contact name
Deborah Fitzsimmons
Contact email
Sponsor organisation
Swansea University
Duration of Study in the UK
1 years, 1 months, 29 days
Research summary
Research Summary
There is an increased demand for upon healthcare services for people affected by cancer. Given the scare resource environment of the NHS there is a need to identify a sustainable approach that enables the best outcomes to be delivered to patients. Most recently, Value-based Healthcare has been put forward as this method. Velindre Cancer Centre (VCC) is working towards this more sustainable yet person-centred service through the development of new digital technology patient education (i.e. RiTTa) to yield more activated patients (i.e. individuals with the knowledge, skills and confidence needed to manage their own health and healthcare).This is key as more activated individuals produce less pressure upon healthcare resources and have better outcomes. This study is to be conducted in partnership with VCC and aims to obtain an in-depth perspective on value in relation to patient education and activation from the perspective of key opinion holders. This information will be used to develop an evaluation framework that facilitates the assessment of the value of future patient education and activation programmes.
Individuals receiving treatment/follow-up at VCC for breast or lung cancer OR accompanying family/friend to breast or lung cancer treatment/follow-up will be eligible to participate in phase 1 and 2, if they are also over 18, have capacity to consent and are fluent in English. Healthcare professionals that have expert knowledge and practical experience of patient education in cancer care OR members of the public registered to attend public involvement talks on digital technology use in healthcare will be eligible to participate in phase 2 if they are also over 18, have capacity to consent and are fluent in English. Phase 1 will be a single interview and phase 2 comprises 3 e-questionnaires and consensus workshops, also known as a Modified Delphi. Participation within the study will be approximately 8 months.
Summary of Results
Background: The prevalence of cancer is expected to increase by approximately one million per decade in the UK. Therefore, it is vital that cancer care services (CCSs) are equipped to meet this increasing patient need. However, there is not an indefinite supply of resources available; therefore, a more sustainable way of working needs to be adopted. An approach to service delivery that focuses on improving the value of services delivered has been heralded as this more sustainable approach. Yet there is not one shared meaning of value. If people are not in agreement on the value goal that services are heading for, then it will be impossible for services to make changes to move closer towards value. The first vital step in moving services closer towards value is developing a shared understanding of value.
REC name
South Central - Oxford C Research Ethics Committee
REC reference
19/SC/0587
Date of REC Opinion
9 Dec 2019
REC opinion
Further Information Favourable Opinion