Joint Hypermobility Syndrome Focus Groups
Research type
Research Study
Full title
Disseminating new research about the Joint Hypermobility Syndrome. A focus group.
IRAS ID
209841
Contact name
Alison McGregor
Contact email
Sponsor organisation
Imperial College London and Imperial College Healthcare NHS Trust
Duration of Study in the UK
0 years, 4 months, 2 days
Research summary
Joint Hypermobility Syndrome (JHS) is a heritable connective tissue disorder featuring excessive flexibility of the joints. The most common symptom is chronic and widespread pain. It is interesting however, that many people have flexible joints, but do not have symptoms.
Physiotherapy is a mainstay of treatment of JHS, although there is no conclusive evidence as to what type of physiotherapy is effective, and not all patients find physiotherapy beneficial.
In a recent study, movement of people with JHS was compared to that of people who are flexible without symptoms, and people with normal flexibility. The differences in movement may help explain why people with JHS experience pain.
The aim of this study is to ask healthcare professionals and people with JHS if this new information can help improve treatment.REC name
London - Brent Research Ethics Committee
REC reference
16/LO/1734
Date of REC Opinion
11 Sep 2016
REC opinion
Favourable Opinion