JACSuN
Research type
Research Study
Full title
The support needs of carers of people with jargon aphasia: An in-depth interview study
IRAS ID
311390
Contact name
Susanna Williams
Contact email
Sponsor organisation
East Suffolk and North Essex NHS Foundation Trust
Duration of Study in the UK
1 years, 2 months, 27 days
Research summary
Jargon aphasia is communication difficulty that can happen after stroke. People with jargon aphasia have clear speech but many of the words they say do not make sense. They can find it difficult to understand what other people are saying. They have difficulties reading and writing. This makes everyday communication challenging for them, their families and friends.
Family and friends may support the person with jargon aphasia as their carer. This is a vital role which researchers have not studied before.
Our research will explore:
What support do carers of people with jargon aphasia need?
Who supports carers? Do speech and language therapists (SLTs), the NHS, social services, or friends and family support carers?
Does the support offered meet their needs?
SLTs working with people with jargon aphasia in East Suffolk and North Essex will share our study information with their carers. We will ask ask carers if they are willing to share their experience. We will interview carers one-to-one using video calling. The interview will last 60-90 minutes.
There is little research into jargon aphasia. Understanding carers needs better could improve support for carers. Meeting carers needs would help people with jargon aphasia.
The British Aphasiology Society Special Award for Jargon Aphasia will fund this research. East Suffolk and North Essex NHS Foundation Trust also support this research.
REC name
North West - Greater Manchester South Research Ethics Committee
REC reference
22/NW/0363
Date of REC Opinion
27 Oct 2022
REC opinion
Favourable Opinion