IONA LCS
Research type
Research Study
Full title
IONA Longitudinal Cohort Study
IRAS ID
329777
Contact name
Craig Ritchie
Contact email
Sponsor organisation
Scottish Brain Sciences Ltd
Research summary
IONA LCS is a research project that will allow the testing of multiple new therapies as well as diagnostic tests for neurodegenerative diseases. IONA LCS acts primarily as a readiness cohort for interventional studies targeting the treatment of neurodegenerative disease but also provides data as the reference standard to validate new diagnostic tests. As such, it is a foundational element to support a range of research projects undertaken by Scottish Brain Sciences and our partners.
IONA LCS study participants will be recruited from a variety of sources which include direct advertising to the public, referral from clinical services, including post diagnostic services, memory clinics and brain health clinics, and research registers. Where possible, assessments and outcome collection will be completed remotely. Blood-draws, and any testing which requires face to face assessment, will be completed either in Scottish Brain Sciences research facilities (including mobile research units), or in the study participant's home depending on their preference.
Given the main objective of the programme, the study is open to people over the age of 50 who range from having no symptoms of neurodegenerative disease to those living with a dementia syndrome at the mild stage of illness.
REC name
East of Scotland Research Ethics Service REC 1
REC reference
23/ES/0032
Date of REC Opinion
24 Aug 2023
REC opinion
Unfavourable Opinion