Intestinal dysmotility. A qualitative study of patient's experiences

• Research type

  Research Study

• Full title

  Intestinal dysmotility. A qualitative study exploring patient experiences from symptom onset to diagnosis and beyond

• IRAS ID

  183227

• Contact name

  Katherine Twist

• Contact email

  katherine.twist@srft.nhs.uk

• Sponsor organisation

  University of Manchester

• Duration of Study in the UK

  2 years, 9 months, 1 days

• Research summary

  Intestinal Dysmotility (ID) is a condition where the gut has lost its ability to co-ordinate muscular activity because of various internal and external factors. ID reduces the easy transit of food and water through the body often leaving a person feeling unwell, bloated and in pain with very little energy as their body cannot take in the nutrients they need. Patients can experience symptoms over many years having many tests and GP visits before a diagnosis can be made. There has been little research done in this area. This study aims to explore the psychological impact of living with ID and to explore their experience of care in order to see where help can be provided.

  All patients with ID at Salford Royal Hospital will be invited to participate by a letter sent by their doctor that will explain the study. On request, they will be given an information sheet and given the chance to ask questions before giving informed consent.

  Patients will then meet with a researcher for an interview. The interview will last for approximately 1 hour. Questions will be on the topics below
  * The journey to getting an ID diagnosis
  * The psychological impact of diagnosis and treatment
  * How ID has affected their relationships with others (professional and personal)
  * How it has affected their outlook for the future
  * Possible windows for psychological intervention

  All interviews will be recorded, typed up and anonymised. All personal data will be deleted. Findings and clinical recommendations will be written for publication.

• REC name

  North West - Greater Manchester West Research Ethics Committee

• REC reference

  16/NW/0220

• Date of REC Opinion

  7 Apr 2016

• REC opinion

  Favourable Opinion