Insight and Quality of Life in individuals with Alzheimer's Disease

• Research type

  Research Study

• Full title

  Insight in Dementia: How does awareness of memory symptoms affect the Quality of Life and well-being for the patient and caregiver?

• IRAS ID

  117849

• Contact name

  Vivek Pattan

• Contact email

  vivek.pattan@nhs.net

• Sponsor organisation

  NHS Forth Valley

• Research summary

  The study comprises two phases, at each of which the participant and carer will be interviewed by an investigator in a clinic setting or at their home. The participant and carer will complete a selection of questionnaires (detailed below) as a measure of insight and Quality of Life and care-related clinical factors.

  Participants will be people over 65 years, have a diagnosis of Alzheimer's Disease, and will be drawn from the NHS Old Age Psychiatry services in Forth Valley and Glasgow. Only those willing to participate with capacity to consent, who have a carer who is in contact with them at least twice per week will be included.
  
  In the first phase the participant and carer will be invited to attend to complete the questionnaires in a clinical interview conducted by a researcher from the study. These will entail:

  The patient:
  1. A demographic data sheet
  2. Addenbrook Cognitive Examination-Revised
  3. Quality of Life Scale - Alzheimer's Disease
  4. The Memory Awareness rating Scale
  5. Hospital Anxiety and Depression scale

  The Carer:
  1. A demographic data sheet
  2.The Zarit Burden Interview
  3.Quality of Life Scale-AD
  4.The Neuropsychiatric Inventory Questionnaire
  5. Disability Assessment for Dementia
  6.The Memory Awareness Rating Scale
  7. WHO Quality of life-BREF
  8. Hospital Anxiety and Depression scale
  9. Burns Relationship Satisfaction scale

  The second phase will be to follow up the same cohort of participants and carers after 1 year (+/- 28 days)they will undergo the same procedure as a year earlier.

  Data from both phases will be compared, analysed and stored.

• REC name

  Scotland A REC

• REC reference

  14/SS/1006

• Date of REC Opinion

  27 Aug 2014

• REC opinion

  Further Information Favourable Opinion