Implementing and evaluating ‘My Healthcare Passport’
Research type
Research Study
Full title
Implementing and evaluating ‘My Healthcare Passport’ in practice for people with learning disabilities.
IRAS ID
139065
Contact name
Kim Manley
Contact email
Sponsor organisation
EKHUFT
Research summary
In 2011 East Kent Hospitals gathered local stakeholders together to develop My Healthcare Passport - a tool designed to enable families and carers to share important information about the individuals with learning disabilities they care for with healthcare professionals on admission to Hospital.
This project seeks to identify how My Healthcare Passport (see attached document) can be used for maximum patient benefit, offering guidance as to its use, and identify approaches, indicators and methods for evaluating outcomes for individual patients.
A participatory action research approach will be employed to engage a group of stakeholders including people with learning disabilities, family members, carers and health and social care professionals to work together to identify ways of achieving the above goals. These stakeholders will be invited to engage in this project and take on the title of Co-Researcher.
The project will take 12 months, with 10 meetings of the Co-researchers over this period. The Chief Investigator will support the group to establish a strategy for achieving the above goals, work within legal frameworks and enabling reflection and adaptation of the strategy.
During this 12 month period Co-researchers will establish working relationships with each other and will engage people they know and work with in how My Healthcare Passport has worked, could work and should be used in the future.REC name
London - Camden & Kings Cross Research Ethics Committee
REC reference
13/LO/1709
Date of REC Opinion
24 Feb 2014
REC opinion
Further Information Favourable Opinion