Impact of young people's involvement
Research type
Research Study
Full title
Assessing the impact of young people’s involvement in a large scale health research programme: A preliminary investigation.
IRAS ID
164912
Contact name
Gail Elizabeth Dovey-Pearce
Contact email
Sponsor organisation
Northumbria Healthcare NHS Trust
Duration of Study in the UK
1 years, 0 months, 24 days
Research summary
Patient and public involvement refers here, to service users supporting health research. There are possible positive and negative impacts of involvement and we need to understand more about when, why and how to involve people.
Researchers have raised four questions: (1) how can involvement in research be better understood?; (2) how and why does involvement influence research?; (3) how can the difference that individuals make to research be measured? and; (4) what makes ‘successful’ involvement more likely?
In our current NIHR research programme (called ‘Transition' (RP-PG-0610-10112), looking at factors supporting young people’s move from children’s to adult services), we have a group of young adults - called the UP Group - involved centrally, within the governance and management structure of the research. We will be asked by our funders (NIHR) to report on our involvement of these young adults. This new satellite study proposed here, aims to build upon current involvement research by examining the differences these young adults have made to the existing ‘Transition’ research.
Main research questions
1. What differences has UP’s involvement made to the existing 'Transition' research?
2. Are new ideas put forward by other researchers about how to measure/report on involvement, helpful in trying to answer this question?
Secondary research aim
3. Give a clear description of the way UP have made their contribution to a large scale health programme.Participants
UP Involvement Team members; A ‘nominated other’ from each UP member (e.g. parent; carer) and; the TRANSITION adult researchers.Methods
Facilitated focus groups (UP members).
Semi-structured postal questionnaire (nominated others.)
Semi-structured individual interview (TRANSITION adult researchers).Analysis
The data will be analysed for main themes and smaller sub-themes. The Chief Investigator will carry this out individually and then discuss findings with a second experienced researcher and three experienced young adult researchers, who have agreed to have this consultative role. This triangulation process will reduce the chance of individual bias influencing the analysis.REC name
Yorkshire & The Humber - Leeds East Research Ethics Committee
REC reference
15/YH/0098
Date of REC Opinion
25 Feb 2015
REC opinion
Favourable Opinion