Impact of COVID-19 on patients with JDM and JSLE [COVID-19]

• Research type

  Research Study

• Full title

  Assessing the wellbeing and resources employed by patients with Juvenile Dermatomyositis (JDM) and Juvenile Onset Systemic Lupus Erythematosus (JSLE) during the COVID-19 pandemic. \n\n\n

• IRAS ID

  284165

• Contact name

  Coziana Ciurtin

• Contact email

  c.ciurtin@nhs.net

• Sponsor organisation

  UCLH

• Duration of Study in the UK

  1 years, 0 months, 1 days

• Research summary

  This study will use an exploratory survey to investigate the impact of the COVID 19 pandemic on the wellbeing of patient’s suffering with JDM/JSLE. It will assess the resources and coping strategies used, and identify mechanisms for improving access to resources for patients affected with these diagnoses. The designed questionnaire will be disseminated through clinics at University College London Hospital (UCLH), through Versus Arthritis and LUPUS UK charities, and via social media.\n\n\n

• REC name

  London - Hampstead Research Ethics Committee

• REC reference

  20/HRA/2565

• Date of REC Opinion

  28 May 2020

• REC opinion

  Further Information Favourable Opinion