iLIVE Project: Volunteer Study

• Research type

  Research Study

• Full title

  iLIVE Project: Live Well, Die Well. A nested Volunteer Study

• IRAS ID

  279753

• Contact name

  John Ellershaw

• Contact email

  johne61@liverpool.ac.uk

• Sponsor organisation

  University of Liverpool

• Duration of Study in the UK

  1 years, 5 months, 31 days

• Research summary

  In the EU about 4 million people die each year from a chronic illness. Many of these people die in pain or distress and care for dying patients and their family is often sub optimal.

  The way we care for dying patients is an indicator of how, as a society, we care for all sick and vulnerable people. Adequate and compassionate care of dying patients is fundamental to human dignity and is a basic human right.

  An international research collaboration is underway, funded by an EU H2020 research grant. This study is an 11 country 'Cohort Study' called the iLIVE Project. The aim of the iLIVE Cohort Study is to contribute to high-quality personalised care at the end of life.

  The UK is participating in the Cohort Study, with data being collected at 1 acute hospital trust and 1 hospice in the North West. The iLIVE Cohort Study was given favourable ethical review by Haydock REC on 7th April 2020, IRAS number: 272927.

  The iLIVE project also includes two 'nested studies', of which the iLIVE Volunteer Study is one. This application describes the research activities for the iLIVE Volunteer Study.

  The aim of this study is to develop and evaluate the implementation of an international volunteer training programme to support patients dying in the hospital setting and their families. It has the following objectives:

  1. Explore the experience and perceptions of the international hospital palliative care volunteer programme, including care delivery, from the perspectives of:
  - Patients and their family members who receive the service
  - Volunteers who deliver the service
  - Health care professionals caring for patients who receive the service

  2. Assess the implementation and impact of a hospital volunteer service for dying patients

• REC name

  North West - Haydock Research Ethics Committee

• REC reference

  20/NW/0271

• Date of REC Opinion

  8 Jul 2020

• REC opinion

  Further Information Favourable Opinion