Identification of Monogenic Diabetes

  • Research type

    Research Study

  • Full title

    Identification of monogenic diabetes in pre-existing studies of type 1 diabetes patients

  • IRAS ID

    205262

  • Contact name

    Andrew Hattersley

  • Contact email

    a.t.hattersley@exeter.ac.uk

  • Sponsor organisation

    University of Exeter

  • Duration of Study in the UK

    2 years, 11 months, 31 days

  • Research summary

    Discovering the DNA (genetic) changes responsible for the rare inherited (monogenic) forms of diabetes has profound effects on a patient’s life. We are currently unable to recognise all of these patients as they often share clinical features to other types of diabetes. For example, those patients with a young age of onset are often misdiagnosed and mistreated as type 1 diabetes. We aim to use a new genetic tool (type 1 diabetes genetic risk score) along with other already available tools to identify patients with genetic forms of diabetes (monogenic diabetes) who are misdiagnosed as type 1 diabetes.

    We will use already collected DNA and clinical data from studies involving type 1 diabetes patients such as the ADDRESS-2 study. We will measure 30 common genetic changes in these patients to calculate their type 1 diabetes genetic risk score. We will use this genetic information along with clinical information to find patients who may have genetic forms of diabetes in these studies. These potential monogenic diabetes patients will then have a genetic test to confirm monogenic diabetes. The patients with a negative genetic test, will then have further more detailed genetic testing to find new cause of monogenic diabetes.

    This study will provide important insights into pancreatic function in humans and may provide further information about possible treatments.

  • REC name

    South West - Cornwall & Plymouth Research Ethics Committee

  • REC reference

    16/SW/0233

  • Date of REC Opinion

    15 Sep 2016

  • REC opinion

    Further Information Favourable Opinion