High-grade glioma patient experiences of support via telemedicine v1
Research type
Research Study
Full title
Experiences of receiving support via telemedicine in high-grade glioma patients
IRAS ID
339605
Contact name
Libby Richardson
Contact email
Sponsor organisation
University of Hull
Duration of Study in the UK
1 years, 1 months, 7 days
Research summary
An interview-based study to interpret High-Grade-Glioma (HGG) (grades 3-4 cancerous tumours located in the brain or spinal cord which are life limiting) patient experiences of receiving supportive appointments from their specialist nurses through telemedicine (emails, phone calls and video calls). This study will be the first to use an interpretative phenomenological approach to understand patient experiences. HGG patients are the brain tumour patient group who receive the most support through telemedicine. Previous research has suggested that telemedicine is an effective modality through which low level psychologically informed palliative support (consisting of information giving, compassionate communication, and the use of psychological techniques e.g., problem solving, assessment and signposting (NICE, 2019)) is delivered by clinical nurse specialists, but little is known about HGG patient experience of this. The aim of this study is to understand experiences of receiving support and building a relationship through telemedicine, and to understand emotional experiences of patients related to accessing support through telemedicine. A minimum of six participants will complete an interview either online or face-to-face and the interview will last for one hour, with additional breaks dependant on need.
REC name
West of Scotland REC 3
REC reference
24/WS/0106
Date of REC Opinion
30 Aug 2024
REC opinion
Further Information Favourable Opinion