Health service use and quality of life in patients with APS
Research type
Research Study
Full title
Utilisation of health services and quality of life in patients with atypical Parkinsonian syndromes.
IRAS ID
296082
Contact name
Boyd Ghosh
Contact email
Sponsor organisation
University Hospital Southampton NHS FT
Duration of Study in the UK
5 years, 0 months, 1 days
Research summary
Patients with atypical Parkinsonian syndromes, which are neurological diseases including progressive supranuclear palsy, corticobasal syndrome and multiple system atrophy, usually deteriorate rapidly after onset of the disease. There are no cures for these diseases and patients rapidly accrue disabilities including problems with their thinking, speech, mobility, swallow, dexterity and behaviour. Patients with these conditions can be referred to multiple members of the community therapy teams and can be seen by specialist doctors, but it is currently unclear whether this provides any benefit to the patients or their carers. This study aims to review quality of life, health utilisation, morbidity and mortality and see if patients and their carers have any benefit from specialist and multidisciplinary services.
REC name
London - Brighton & Sussex Research Ethics Committee
REC reference
22/LO/0534
Date of REC Opinion
16 Aug 2022
REC opinion
Favourable Opinion