Health care perceptions of patients with Diabetic Kidney Disease
Research type
Research Study
Full title
Study to understand the health care perceptions of patients with Diabetic Kidney Disease
IRAS ID
310053
Contact name
Frederick Tam
Contact email
Sponsor organisation
Imperial College London
Duration of Study in the UK
0 years, 6 months, 1 days
Research summary
The number of people worldwide with type 2 diabetes is increasing with an expected 450 million people expected to have type 2 diabetes by 2030. Poorly controlled blood sugars are associated with a risk of complications related to the eyes, heart and kidneys amongst other organs, with diabetes related kidney disease (DKD) the commonest cause of kidney failure worldwide.
Whilst understanding the basic science associated with diabetes and its associated complications is important, a greater understanding of patient experiences and outcomes with regards to the management of their diabetes would allow researchers and clinicians to identify new ways to better empower patients to be involved in managing their diabetes and preventing complications such as DKD. Utilising research questionnaire we aim to gain insight from individuals with DKD on their clinical journey and how they feel they could have been better empowered to have had better diabetes control and prevent complications such as DKD.
The questionnaire will be advertised across the United Kingdom via patient support social media groups. Patients with kidney disease attending general nephrology clinics in North West London, will all be given an advertising poster, which will include details of how to access the online questionnaire. This will be conducted in an un-targeted fashion, with no individual patient specifically targeted, or clinical information reviewed. Posters advertising the study will also be displayed in patient waiting areas. We hope to gain further insight into areas of clinical management done well and areas where patients feel improvements are needed. Study results will be analysed and published in a peer reviewed journal with recommendations made with regards to how care should be altered to aid greater patient involvement and empowerment. The study is funded by the Institute of Global Health Innovation, Imperial College London.
REC name
East Midlands - Nottingham 2 Research Ethics Committee
REC reference
23/EM/0287
Date of REC Opinion
21 Dec 2023
REC opinion
Favourable Opinion