HAEM-PROSPECT 2

• Research type

  Research Study

• Full title

  HAEM-PROSPECT-2: Quantifying patient preferences for gene therapies in haemophilia A

• IRAS ID

  343332

• Contact name

  John Spoors

• Contact email

  john.spoors@lshtm.ac.uk

• Sponsor organisation

  Research Governance & Integrity Office

• Duration of Study in the UK

  1 years, 0 months, 0 days

• Research summary

  The purpose of this research is to assess patient preferences for gene therapies in haemophilia A and simulate the clinical influence on these. The research will utilise online discrete choice experiment (DCE) methodology with clinician information videos via a two-arm design. The study objectives are: (1) to quantify patient preferences through a DCE for forthcoming gene therapies in haemophilia A (2) to assess the impact of clinician influence on patient preferences via clinician information videos (3) to predict potential uptake of gene therapy in haemophilia A.

• REC name

  East of England - Cambridge South Research Ethics Committee

• REC reference

  24/EE/0120

• Date of REC Opinion

  4 Jun 2024

• REC opinion

  Further Information Favourable Opinion