Geospatial mapping of nontuberculous mycobacteria in cystic fibrosis

  • Research type

    Research Study

  • Full title

    Spatial study of nontuberculous mycobacteria in cystic fibrosis patients in the UK.

  • IRAS ID

    251985

  • Contact name

    Dorothy Grogono

  • Contact email

    dgrogono@nhs.net

  • Sponsor organisation

    Royal Papworth Hospital NHS Foundation Trust

  • Duration of Study in the UK

    1 years, 0 months, 1 days

  • Research summary

    The aim of this study is to explore geographical differences in nontuberculous mycobacteria infection in patients with cystic fibrosis. One of the main questions we we hope to answer is whether or not patients with similar strains attend the same hospital or live close to one another. We hope to do this by comparing whole genome sequencing data of M. abscessus (already collected - IRAS project ID: 97508) with geographical data from the CF registry (already collected).

    Nontuberculous mycobacteria can cause lung damage in patients with cystic fibrosis. Mycobacterium abscessus in particular is a multi-drug resistant organism which causes an accelerated decline in lung function. Evidence has recently emerged that this organism can be transmitted between patients and that there are dominant circulating clones within the cystic fibrosis population, which appear to lead to worse infection. At present very little is understood about the geographical variation of these species.

  • REC name

    East of England - Cambridgeshire and Hertfordshire Research Ethics Committee

  • REC reference

    18/EE/0406

  • Date of REC Opinion

    28 Mar 2019

  • REC opinion

    Further Information Favourable Opinion