Genotyping in patients with primary immunodeficiency

  • Research type

    Research Study

  • Full title

    Genotyping in patients with primary immunodeficiency

  • IRAS ID

    217444

  • Contact name

    William Rae

  • Contact email

    will.rae@nhs.net

  • Sponsor organisation

    University Hospital Southampton NHSFT

  • Duration of Study in the UK

    5 years, 0 months, 1 days

  • Research summary

    Primary immunodeficiency diseases are rare inherited conditions effecting the immune system of patients. They carry a significant morbidity and mortality for patients. We will perform genetic analysis of 212 genes already known to cause primary immunodeficiency in participants.

    Many of these tests are currently unavailable within the NHS, therefore this is being conducted as a research project until these tests and methodologies can be translated into the routine NHS care pathway for patients. Mounting evidence indicates that knowledge of the genetic cause of a patients immunodeficiency improves patient care and treatment options.

  • REC name

    South Central - Hampshire A Research Ethics Committee

  • REC reference

    16/SC/0674

  • Date of REC Opinion

    21 Dec 2016

  • REC opinion

    Unfavourable Opinion