Fabry disease study to determine the safety and efficacy of lucerastat

  • Research type

    Research Study

  • Full title

    A multicenter, double-blind, randomized, placebo controlled, parallel-group study to determine the efficacy and safety of lucerastat oral monotherapy in adult subjects with Fabry disease.

  • IRAS ID

    242324

  • Contact name

    Derralynn Hughes

  • Contact email

    rmgvdah@ucl.ac.uk

  • Sponsor organisation

    Idorsia Pharmaceuticals Ltd

  • Eudract number

    2017-003369-85

  • Clinicaltrials.gov Identifier

    NCT03425539

  • Duration of Study in the UK

    1 years, 6 months, 1 days

  • Research summary

    The purpose of the study is to test if lucerastat, the new study drug, can reduce symptoms of Fabry disease such as pain and stomach symptoms when administered alone. The purpose is also to see if lucerastat is safe for people with Fabry disease.
    Lucerastat is currently not “on the market” (not available to be prescribed to you) in any country.
    So far, lucerastat has been tested in 86 healthy people (who do not have Fabry disease) and 10 patients with Fabry disease. The level of fatty substance in the blood was reduced in people with Fabry disease treated with lucerastat for 12 weeks.

  • REC name

    London - Westminster Research Ethics Committee

  • REC reference

    18/LO/0434

  • Date of REC Opinion

    14 May 2018

  • REC opinion

    Further Information Favourable Opinion