Exploring the Quality of Life Impact of Retinal Detachment

  • Research type

    Research Study

  • Full title

    Quality of life assessment after pneumatic retinopexy in patients with retinal detachment

  • IRAS ID

    341720

  • Contact name

    Roxane J Hillier

  • Contact email

    roxane.hillier@nhs.net

  • Sponsor organisation

    Rotterdam Ophthalmic Institute / Rotterdam Eye Hospital

  • Duration of Study in the UK

    0 years, 3 months, 0 days

  • Research summary

    Retinal detachment and its treatment can have a major impact on quality of life. The purpose of this study is to explore the specific quality-of-life issues of patients after pneumatic retinopexy (one of the surgical treatments for retinal detachment). Eye doctors (ophthalmologists) may consider these issues when evaluating patients with retinal detachment. Quality-of-life issues will be explored through semi-structured telephone interviews with patients from the Newcastle Eye center who will have or have had pneumatic retinopexy treatment. This center is one of the few in Europe to offer pneumatic retinopexy to patients with retinal detachment. The interview topic guide is based on an extensive literature review and expert opinion. Interviews will be coded into quality-of-life domains and subdomains, using an earlier framework of quality of life in other ophthalmic diseases. The quality-of-life domains are: activity limitations; visual, ocular and general symptoms; health concerns; emotional and social wellbeing; mobility issues; economic impact; inconveniences; and different coping strategies. A second aim is to add these specific issues to the content of a retinal detachment-specific patient-reported outcome measure (PROM). This PROM was developed based on patient experiences, specifically telephone interviews with 64 patients with retinal detachment from the Rotterdam Eye Hospital, The Netherlands. A retinal detachment-specific PROM can help determine the impact of retinal detachment and treatment on an individual's quality of life, and the benefit of treatment.

  • REC name

    South Central - Berkshire Research Ethics Committee

  • REC reference

    24/SC/0262

  • Date of REC Opinion

    1 Oct 2024

  • REC opinion

    Further Information Favourable Opinion