Exploring the psychosocial impact of living with advanced COPD
Research type
Research Study
Full title
Exploring the psychosocial impact of living with advanced Chronic Obstructive Pulmonary Disease on those attending two different models of palliative care services.
IRAS ID
255972
Contact name
Caroline Sime
Contact email
Sponsor organisation
University of the West of Scotland
Clinicaltrials.gov Identifier
GN19RM009, R&D
Duration of Study in the UK
0 years, 8 months, 30 days
Research summary
The daily life of patients with advanced chronic obstructive pulmonary disease (COPD) may incorporate living with a high symptom burden, facing a life which is compromised by reduced physical and social activities, and hence decreased QoL. Anxiety and depression are common in COPD and are connected with poor health outcomes, lower QoL, higher hospital admission rates, and premature death. Experiencing poor QoL increases the social and economic burden. As COPD is correlated with multiple comorbidities, there is increased use of healthcare resource, direct medical and pharmacy.
Multiple approaches, including access to palliative care specialist, are recommended for COPD patients to provide a continuum of healthcare management, and thus improve their quality of life.
Patients with doctor-diagnosed advanced COPD will be eligible for the study.
This PhD study will use a mixed method approach that will provide insight into the experiences of patients with advanced COPD accessing two different models of palliative care services- specialised palliative care (hospice) and non-specialised palliative care (respiratory clinic) in the West of Scotland. This study aims to investigate the quality of life and psychosocial aspects (such as burden, distress, anxiety and depression) of patients with advanced COPD, attending palliative care services. The presented research will compare two models of healthcare, specify the similarities and differences between them, patients’ experiences of care settings and scores on QoL, depression, and anxiety. Possible factors influencing patients’ QoL, depression and anxiety, will be investigated.
It is hoped that the information obtained from this study may improve the services that are offered to people with advanced COPD.
The study is expected to last until November 2019. The maximum time from an initial approach by the clinical team to the interview and/or questionnaire should be around two weeks. The interview is expected to take 30-60 minutes and the questionnaires around 20 minutes.REC name
London - Stanmore Research Ethics Committee
REC reference
19/LO/0383
Date of REC Opinion
17 Apr 2019
REC opinion
Further Information Favourable Opinion