Exploring the impact of balance and falls in people with SBMA
Research type
Research Study
Full title
Exploring the impact of balance and falls in people with Spinal Bulbar Muscular Atrophy
IRAS ID
335149
Contact name
Gita Ramdharry
Contact email
Sponsor organisation
University College London
Clinicaltrials.gov Identifier
Z6364106/2024/02/45, Data protection reference number
Duration of Study in the UK
1 years, 0 months, 1 days
Research summary
Falls are commonly reported by people with Spinal and Bulbar Muscular Atrophy (SBMA) but to date there has been little formal investigation of this problem. Frequent falling increases the risk of injury and reduces mobility due to avoidance of activities perceived to increase the threat of falls.
Developing interventions targeting balance rehabilitation in people living with neurological conditions is inherently complex. The MRC recommends that prior to developing complex interventions, researchers should consider the priorities and context of those individuals that the intervention is targeted at.
Qualitative research can provide important data on this. In this study, we will explore the experiences of balance and falls in people with SBMA, with a view to enhancing understandings of the challenges they face, the strategies they use to mitigate issues with balance/falls, and priorities for future balance research.
REC name
London - South East Research Ethics Committee
REC reference
24/PR/0694
Date of REC Opinion
26 Jul 2024
REC opinion
Further Information Favourable Opinion