Exploring patient and healthcare providers’ experiences of cancer care
Research type
Research Study
Full title
Exploring patient and healthcare providers’ experiences and perceptions of secondary care provision for Black African and Black Caribbean men living with prostate cancer
IRAS ID
311357
Contact name
Olukayode Fadina
Contact email
Sponsor organisation
University of Bath
Duration of Study in the UK
1 years, 6 months, 30 days
Research summary
Prostate cancer (PCa) racial disparity exists at stages of presentation, diagnosis, treatment, survival, and the quality of life. Racial disparities further exist at secondary care level, as Black men report less follow-up care or post treatment psychosocial support for PCa than white men. This has been attributed to inequalities in communication, information provisions and care experience.
Existing studies have explored aspects related to ethnicity, patient-provider communication, information provision in PCa, access to treatment and outcomes, and variations in cancer patients’ ratings of care. However, focus on patient-healthcare providers’ experiences and perceptions of secondary care provision for Black African and Black Caribbean men in UK with PCa appears limited.
While evidence from studies suggests that patient-provider communication gaps, and information-provision may cause variations in PCa care, they have not explored the influence of cultural sensitivity and cultural competency among healthcare professionals could play a part in this. Likewise, the influence of cultural factors, beliefs, perceptions and experience in PCa care in secondary care settings among BA/BC in the UK is currently under-explored.
This study aims to explore and understand the dynamics and process of patient-provider communication, information and healthcare provision for BA/BC men with PCa who have attended secondary care. A qualitative research methodology will be used in this study, and data will be gathered through focus group for BA/BC men with PCa and semi-structured interviews for healthcare professionals (using telephone and video technology) or face -to-Face. 24 participants will be recruited for this study, including 18 BA/BC men with PCa and 6 Healthcare professionals. Interpretative Phenomenological Analysis (IPA) taking a multi-perspective analytical approach will be used to analyse the experiences of patients and healthcare professionals.
The end product will be a detailed account of patients’ and healthcare professionals’ perceptions supported by direct quotes. Findings from this study will be used to inform policy recommendations to address inequalities in cancer care among ethnic minority groups disproportionately affected by PCa, specifically in relation to culturally-sensitive and patient-centred communication and information provision.
REC name
South Central - Oxford C Research Ethics Committee
REC reference
23/SC/0046
Date of REC Opinion
17 Apr 2023
REC opinion
Further Information Favourable Opinion