Exploring Pain in Survivors of Torture: A qualitative study (V1)
Research type
Research Study
Full title
Exploring Pain in Survivors of Torture: A qualitative study investigating the experience and impact of persistent pain in persons exposed to torture.
IRAS ID
238178
Contact name
Richard Boulton
Contact email
Sponsor organisation
St George's, University of London
Duration of Study in the UK
0 years, 5 months, 9 days
Research summary
Torture is a barbaric and inhumane act, often leaving its survivors with a variety of long-lasting and interacting physical and psychological problems which impact on their ability to function in daily life. The psychological consequences of torture have been widely considered within refugee healthcare and research. However, despite high rates of physical pain among survivors of torture, it is poorly understood and often overlooked in both the clinical and research settings.
Anecdotal evidence suggests torture-survivors do not have as favourable outcomes from pain management interventions as the general persistent pain population, with low engagement and high failed attendance rates. Research in other populations demonstrates that factors such as pain beliefs, including catastrophising, fear-avoidance and self-efficacy, influence outcomes from pain management interventions. Furthermore, attitudes and beliefs regarding causes, treatment and experience of pain vary significantly among cultures. However, to date, only limited research has investigated these factors in relation to the experience of survivors of torture.
This study aims to address gaps in research, by gaining an in-depth understanding of persistent pain from the perspective of the individual. Through exploring pain beliefs, the impact of pain, and experiences and expectations of healthcare services, we hope to be able to inform service development and improve interventions for managing persistent pain in survivors of torture.
The study will recruit patients from an NHS Pain Clinic specifically set up for survivors of torture, with all patients attending the clinic during the three-month study period, recognising the inclusion/ exclusion criteria, invited to take part. It is anticipated the study will recruit 6-10 participants.
Data will be collected through semi-structured interviews, appointment observations and medical records, in order to provide rich, holistic insights into individuals’ views and experiences. Data will be synthesised and analysed to identify emergent themes, before interpretation and discussion of the findings takes place and a final report is written.
REC name
London - Brent Research Ethics Committee
REC reference
18/LO/0420
Date of REC Opinion
30 Apr 2018
REC opinion
Further Information Favourable Opinion