Experiences of Receiving Neuropsychological Assessment Feedback. V3.0
Research type
Research Study
Full title
Experiences Of Receiving Feedback On A Neuropsychological Assessment: A Multi-Perspective Interpretative Phenomenological Analysis Design.
IRAS ID
336983
Contact name
Natasha Vall
Contact email
Sponsor organisation
Teesside University
Clinicaltrials.gov Identifier
2024 Feb 19496 WATTS, Teesside University Ethical Approval. Approval letter attached.
Duration of Study in the UK
1 years, 2 months, 25 days
Research summary
Research Team: Kayleigh Watts, Dr Sarah Craven-Staines, Dr James Olvanhill, Dr Matthew Unwin and Debbie Smith.
Dementia is an umbrella term used to describe progressive brain disorders. Within the NHS, a person may be referred for a neuropsychological assessment when it is unclear as to whether there is a cognitive impairment and/or whether the cognitive impairment is caused by dementia, and/or when the sub-type of dementia is unclear.
Researchers have begun to understand the experience of neuropsychological assessments, however, much of the focus is on the all-encompassing assessment process / diagnostic disclosure. Neuropsychological assessment feedback, exclusively, has little consideration. Furthermore, little is known about the experience of receiving neuropsychological assessment feedback from the perspective of family members / carers; they are often involved in aspects of the assessment process, including the receipt of feedback.
The primary aim of the research study is to examine the lived experience of patients who have received feedback (verbal and/or written) following a neuropsychological assessment as part of a dementia assessment, and the experience for family members / carers who have been involved in the receipt of the feedback. Participants will be recruited from two NHS Trusts within the North of England.
Through a Multi-Perspective Interpretative Phenomenological Analysis design (detailed in later sections), the researcher intends to interview four patient participants and four family member / carer participants (one-to-one interviews). Interviews, occurring virtually or in clinic, will be audio/video recorded and transcribed verbatim.
In collaboration with the research team the data will be analysed using six stages: reading and re-reading, initial noting, developing emergent themes, searching for connections across emergent themes, moving to the next case, and looking for patterns across cases. In understanding and making sense of the unique experiences of receiving neuropsychological assessment feedback, findings will be discussed in hope to contribute to improving service provision.
REC name
South Central - Hampshire A Research Ethics Committee
REC reference
24/SC/0107
Date of REC Opinion
3 May 2024
REC opinion
Further Information Favourable Opinion