Experiences of people with dementia and carers using ATT at home

  • Research type

    Research Study

  • Full title

    Examining the experiences of how and why people with dementia and their carers use assistive technology and telecare at home: An ethnographic study linked to the ATTILA(Assistive Technology and Telecare to maintain Independent Living At Home for People with Dementia) Trial

  • IRAS ID

    143521

  • Contact name

    Matthew Lariviere

  • Contact email

    m.lariviere@uea.ac.uk

  • Sponsor organisation

    University of East Anglia

  • Duration of Study in the UK

    1 years, 8 months, 25 days

  • Research summary

    We need to directly see and hear from people with dementia and their carers if we are to understand how their views and experiences affect whether and how they decide to use assistive technology themselves. Directly observing how both people with dementia and their carers deal with the devices would help with understandings about how they fit these devices into their daily life and how their relations with these devices may change over time. Observing and talking about this at the time is especially helpful with people with dementia who may be less able to use words as the illness progresses. To do this, the researcher will spend time and talk with seven pairs (each of one carer and one person with dementia) in the home of the person with dementia once every two months for a total of six visits in a year. The people who take part will be chosen from people already taking part in the ATTILA trial. Each visit will take between two and five hours. The data collected will be fieldnotes of what the researcher observes and audio-recordings from some of the conversations in peoples’ homes. The recordings will be transcribed. Data will be analysed using: narrative methods to gain peoples’ stories, thematic methods to examine the different meanings of experiences and discursive methods to examine ways in which people describe their experiences. Findings will be disseminated at academic conferences, visits to and workshops with charitable organisations, consultations with businesses, and in academic journals.

  • REC name

    London - Bromley Research Ethics Committee

  • REC reference

    14/LO/2244

  • Date of REC Opinion

    16 Dec 2014

  • REC opinion

    Unfavourable Opinion