EXpanding PRES for multiple visitS (EXPRESS)
Research type
Research Study
Full title
A mixed methods study to explore the feasibility of increasing the frequency of administration of the Participant in Research Experience Survey (PRES) from the view point of research participants and research delivery staff.
IRAS ID
331956
Contact name
Christopher Speed
Contact email
Sponsor organisation
Newcastle upon Tyne Hospitals NHS Foundation Trust.
Duration of Study in the UK
0 years, 9 months, 0 days
Research summary
In the United Kingdom there is a drive to place research participants at the heart of their research journey. The Participant in Research Experience Survey (PRES) was launched in 2015. It collects a one time, snapshot view of the research participant's experience during the course of their study or trial experience. The findings are pooled by the National Institute for Health and Care Research and reported annually. Nationally the findings from PRES cannot be linked to a study or site. In the North East and North Cumbria Clinical Research Network (NENC CRN) a new digital solution has been created that can link PRES feedback to an individual study and site. This was used very effectively during the COVID-19 pandemic where feedback received by sites in real time allowed changes to be made to improve research participant's experience.
The EXPRESS project is looking into how easy it would be to extend the digital PRES delivery from the one time snap shot to multiple times during the participant's journey. It is also taking the opportunity to review the content of PRES to potentially improve on the depth of feedback collected. The views of both research participants and research delivery staff will be sought.
The project is mixed methods in design with data collection via an online survey and interviews. All research participants in the NENC CRN area who complete a digital PRES will be invited to take part in the online survey. Initially, research delivery staff from three trusts within the NENC CRN area will be invited to complete the survey and express an interest in taking part in a interview. The aim is to interview 10 members of staff from the research delivery teams.REC name
South Central - Berkshire B Research Ethics Committee
REC reference
24/SC/0024
Date of REC Opinion
1 Feb 2024
REC opinion
Further Information Favourable Opinion