Evaluation of Memory Assessment Services: Main Study (phase 2) v1
Research type
Research Study
Full title
Using Patient Reported Outcome Measures (PROMs) to Improve Dementia Services: Evaluation of Memory Assessment Services: Main Study (phase 2) v1
IRAS ID
158323
Contact name
Sarah Smith
Contact email
Sponsor organisation
London School of Hygiene & Tropical Medicine
Research summary
Dementia is becoming an increasingly important challenge as more people experience it either themselves or through a family member. It also represents an enormous challenge for health and social care services. As new treatments and ways of caring are introduced, we need to be able to assess the impact they have on the quality of life (QoL) of people with dementia and their lay carers. We also need to be able to provide information to the public, providers such as GPs and hospitals, and those who commission services about the effectiveness of local services. In this study we will measure the QoL of people with dementia in two ways: by trained staff administering questionnaires to the person with dementia and by asking their lay carer (eg a family member) to complete a questionnaire. We will also ask the lay carers about their own state of health and QoL. We will use these data to find out about the costs and benefits of Memory Assessment Services (or memory clinics) for early diagnosis of dementia and post-diagnostic support that is offered by these clinics. This study builds on our previous pilot work (REC reference 13/LO/0544). We will recruit 2000 people with dementia and their family carers from 80 clinics around the UK. Written consent will be obtained from those taking part.
REC name
London - Queen Square Research Ethics Committee
REC reference
14/LO/1146
Date of REC Opinion
10 Sep 2014
REC opinion
Further Information Favourable Opinion