Evaluating how lung cancer patient experiences affect outcomes
Research type
Research Study
Full title
Evaluating how patient experiences affect outcomes: A data linkage cohort study of people with lung cancer across England
IRAS ID
236739
Contact name
Laila Tata
Contact email
Sponsor organisation
University of Nottingham
Duration of Study in the UK
2 years, 0 months, 0 days
Research summary
There is very limited knowledge of how lung cancer patients’ experiences of their own healthcare can affect their actual health outcomes, which is fundamental in ensuring evidence-based, patient-centred care to drive improvements in wellbeing and long term health.
We want to know whether the experiences of people who could benefit from treatment are positive or negative with regards to events and communication along their cancer care journey; and whether these are associated with particular features of their healthcare setting, characteristics of their cancer, or their own attributes. We then want to investigate whether patients with shared experiences make similar decisions and have similar outcomes, using the results to improve key aspects of the cancer pathway.
The Cancer Patient Experience Survey sends a detailed questionnaire to people with cancer, so far capturing the experiences of 14,000 people with lung cancer each year since 2010. Due to the poor expected outcomes following a lung cancer diagnosis, responses included in the survey are most representative of patients who would most benefit from decisions for active anti-cancer treatment, offering a unique opportunity to gain insight on the factors that influence such decisions.
REC name
London - City & East Research Ethics Committee
REC reference
18/LO/0110
Date of REC Opinion
22 Jan 2018
REC opinion
Favourable Opinion