EPICare

• Research type

  Research Database

• IRAS ID

  334905

• Contact name

  Rachel Upthegrove

• Contact email

  r.upthegrove@bham.ac.uk

• Research summary

  Early Psychosis Informatics into Care (EPICare): Stages 2 & 3

• REC name

  East Midlands - Derby Research Ethics Committee

• REC reference

  24/EM/0151

• Date of REC Opinion

  8 Jul 2024

• REC opinion

  Favourable Opinion

• Data collection arrangements

  Data collected and stored will include routine EHR data, including Patient-Reported Outcome Measures (PROMs; collected via the CareLoop smartphone app), Clinician-Reported Outcome Measures (CROMs), patient demographic data, and treatment-related data. All data leaving each participating NHS trust will be pseudonymised.

• Research programme

  Early Psychosis Informatics into Care (EPICare) is a national digital registry of pseudonymised data pooled from electronic health records (EHR) of people with first-episode psychosis (FEP) receiving Early Intervention for Psychosis (EIP) services at participating NHS Trusts, together with NHS service-level, locally-held clinician dashboard and clinical decision support system (CDSS) that enable the visualisation of data at the Trust service and patient levels. The registry will allow epidemiologically representative insights into incidence rates, what treatment is being offered and taken up by whom, and what existing treatments work best in real world settings. Individual NHS service-level dashboard data will drive improvements in care for people with FEP.

• Research database title

  Early Psychosis Informatics into Care (EPICare): Stages 2 & 3

• Establishment organisation

  Birmingham Women’s and Children’s NHS Foundation Trust

• Establishment organisation address

  Birmingham Childrens Hospital

  Steelhouse Lane

  Birmingham

  B4 6NW